Arelis and Russell from Rare Genomics Institute
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- Arelis - vollunteer management director
- 165 volunteer - 10 is the average, 5 hour minimum
- 90% of volunteers do it completely voluntarily
- No paid staff - all HR is volunteers
- ED was connected to a grant. But still participating.
- 100% volunteer organizations
- Help individuals raise funds to fight rare genemics
- Software, infrastructure, patient advocacy, IT team
- Each team can submit funding requests, travel, conferences
- Receives donations from corporations