Lymphoma

Wed Jan 9, 2024

• Shits aren't well addressed for cancer patients - [1]
• Should a brain cancer treatment patient go to the ER for serious constipation - Could be serious if no shit for 1 week - [2]. If no BM after 1-2 days of laxative, go to ER.
• Fecal impaction - [3]. Suggested order is laxative followed by physical means. Careful about complications. Can take days to weeks to form over time [4]
• Dulcolax (bisacodyl) forces shit out. Miralax (polyethylene glycol) softens it first, takes longer. [5]
• Miralax works by softening shit with water by making stomach feed water into the shit. [6]

Mon Nov 25, 2024

• Forwarded Kaia's AETNA cara manager release form to HJ so MJ can communicate with AETNA
• Should I ask if HJ wants to set up portal at Neurosurgens of NJ by phone? I can call to find out about treatment scheduling before doing this.
• Kessler will check if insurance covers treatment.

Fri Nov 22, 2024

• Called MyChart tech support via Barnabas
• Called Barnabas regarding records. Sounds like HIPPA Release, talked to Kenya. We can do so, they just send a text to patient with release form. Called legal re PoA. LM with David Mebbins.
• Totaled car insurance worked out
• Setting up appointment with Dr. Liu and Dr Brown.
• Sent intake info to Kessler Rehab for eye work, occupational therapy - prescription, insurance, doctor info.
• Sent blood work prescription to criel@firstcarenj.com as We just talked on the phone. Please find the bloodwork prescription attached. Do you need anything else from us. Hieronim

Mon Nov 18, 2024

• RWJBH MyChart - online login [7]. Tech support - [1-833-764-3570.]
• Epic - promoting 'zero events of preventable harm'. Includes billing and scheduling.
• RWJBarnabas Health HIE - only available to doctors and providers.
• Hospital - [8]
• [9] RWJ Barnabas Health
• What patient record system does barnabas use?
• Medical records rights - [10]
• Patient portal is accessible for patient on smartphone. [11]
• Is patient file accessible in realtime? [12]
• Is patient file accessible to patient? [13]. HIPPA privacy rule.
• Get the patient file. Patient can do it.
• Get the source.
• No standard procedure exists for PCNSL. [14]
• What kind of lymphomas occur in the brain? [15]
• What kinds of brain tumors exist? 120 types. [16]
• CAT, PET, bone biopsy, blood, genetic tests.
• Are all lymphomas in the brain called CNS lymphomas? Yes [17]
• CNS lymphomas - [18]
• Start with visitor desk.
• Admin staff outside of nurse?
• Probably there a round by the doctor is around? Ask nurse when he is making his rounds.
• Is brain lymphoma the same as lymphoma in the brain? [[19]
• What is the typical treatment for lymphoma once tumor is removed? Chemo, ratiation, immunotherapy drugs, stem cell treatment, or no treatment. [20]
• When is he getting out of the hospital?
  • What kind of care
• Chemo cycle is for ex 28 days - 1-3 days, then off. Or 3 week - day 1 and 8, and all else is off.
• What exams are we waiting for?
• What will the exams show?
• What will the exams not show.
• What is the proposed treatment from here?
• What results are we waiting for?
• For each result, what are the courses of action?
• When is chemo starting?
• What is the expected schedule for chemo? Number of times? Does the intensity change?
• What are typical complications that happen?

Sat Nov 16, 2024

• Open access publication charges. Institutions pays. Rutgers allows publish for free in open access journals (Rutgers pays).
• Brain edema - fluid in brain
• D-index out of all H-index* - [21]
• https://www.adscientificindex.com/scientist/hieronim-jakubowski/1451740
• SIF - scietific impact factor -
• h-index of scientists (Hirsch index)- [22]
• Impact factor of a journal - [23]
• british journal of neurosurgery impact factor - 0-1
• Open source HIFU software [24]
• HIFU - high intensity focused ultrasound - [25]. [26]
• Wycieli 6x2x2 cm
• 1% complications according to Dr. Liu - [27]
• Brain lymphoma [28]
• https://wmed.edu/node/3392#:~:text=Biosketch,field%20of%20intracranial%20venous%20stenting.